Virtual Youth Club MeetingsJoin our regular online catch-ups, led by our Youth Representatives. Meet other young people, share experiences, have a laugh and help shape your Youth Club.
Welcome to Your Youth Club!
A place to connect, share and belong.
Being part of the TSANZ Youth Club means having a community of people who understand what it's like to live with Turner syndrome. It's a space to make friends, share experiences, ask questions and have fun together.
Connect, Share & Belong
Messenger Youth ChatStay connected between meetings through our private Messenger group for young people aged 13–20. Chat, share experiences and build friendships in a supportive community.
Join the Youth ClubReady to get involved? Explore our House Rules, complete the registration and consent process, and get connected with your Youth Club community.
Virtual Youth Club Meetings
Connect, share experiences and make new friends.
Our virtual Youth Club meetings bring young people together through Microsoft Teams for relaxed, friendly catch-ups led by our Youth Representatives.
💬 Your space to connect
Meet others who understand what it's like to have Turner syndrome. Share stories, ask questions, exchange ideas and enjoy getting to know each other.
🦋 Led by young people
Our Youth Representatives lead the meetings and help shape activities around what matters to members.
💜 Safeguarding and support
All meetings are recorded for safeguarding purposes. Nominated TSANZ adults are available to provide support or intervene when needed but do not routinely attend.
Everyone participating must follow our Youth Club House Rules, which you can read below.
Messenger Youth Chat
Stay connected, make friends and keep the conversation going.
Our TSANZ Messenger Youth Chat is a friendly online space for young people aged 13–20 to connect between Youth Club activities, share experiences and build friendships.
💬 Connect between meetings
Keep in touch with other young people who understand what it’s like to have Turner syndrome. Share what’s happening, ask questions and enjoy being part of the community.
🦋 A space for young people
The chat is a peer-to-peer space where young people can connect directly, with nominated TSANZ adult moderators available to support and intervene when needed.
💜 Safe and supported
The chat is not monitored 24/7, and private messages between members are not monitored by TSANZ. All participants are expected to follow our Youth Club House Rules.
🔒 Joining the chat
Membership is managed by TSANZ. Once the required consent has been confirmed, eligible participants receive an invitation link and their membership is approved by a group administrator.
Your Club, Your Voice
Created for young people, shaped by young people.
TSANZ Youth Club is a place where your voice matters. Our Youth Representatives help lead the Club, bring young people together and create opportunities to connect, share experiences and build friendships.
🦋 Have your say
Got an idea for a Youth Club activity, conversation or online catch-up? We'd love to hear it. Your ideas help shape what the Youth Club becomes.
💜 Be yourself
There's no pressure to share more than you're comfortable with. Whether you enjoy chatting, listening or getting involved in activities, you're welcome here.
✨ Grow together
The Youth Club is about building friendships, supporting one another and creating a community where young people with Turner syndrome feel connected and included.
Staying Safe Together
Your space. Your community. Everyone's safety matters.
We want everyone to feel welcome, included and comfortable being themselves at TSANZ Youth Club.
Our House Rules help keep our virtual meetings and Messenger Youth Chat friendly, respectful and safe for everyone.
They explain what's expected, how we protect privacy, what adult support is available and what to do if something doesn't feel right.
Please take a few minutes to read the rules and discuss them with your parent or caregiver before joining.
TSANZ Youth Club House Rules
A few simple rules to keep our online Youth Club and Youth Chat safe, welcoming and fun for everyone.
🦋 Your Youth Club
The Youth Club is run by our Youth Representatives, with support from TSANZ’s Youth and Family Officers. We want this to be a space where young people can connect, talk openly, share experiences and help shape what the Youth Club becomes.
💜 Be kind
Everyone should feel welcome. Bullying, teasing, harassment, discrimination or deliberately making someone uncomfortable isn’t okay.
💬 Keep it appropriate
It’s absolutely okay to talk about Turner Syndrome, ask questions, share experiences and have a laugh. Conversations and content still need to be appropriate for everyone taking part.
🔒 Respect everyone’s privacy
What people share in the Youth Club should be treated with respect. Don’t screenshot, photograph or share another person’s comments, images or personal information outside the group without their permission.
🎥 Meetings are recorded
Youth Club virtual meetings will be recorded as a record of the session. Participants will be made aware of this before joining, and the recordings will be managed by TSANZ.
Personal recordings, screenshots or sharing of meeting content by participants are not permitted.
🤝 Adults are there when you need them
The Youth Club is run by our Youth Representatives, rather than adults sitting in and running the sessions. TSANZ’s Youth and Family Officers, or another nominated adult representative if they are unavailable, will have supervisory access to the meetings.
An adult support person will also be on call for every session. If our Youth Representatives need help managing a situation or believe adult support is needed, they can contact that person to join the meeting and assist.
📱 Keep contact safe
Be thoughtful about sharing personal contact details or privately messaging other Youth Club members outside the group.
If anything about an interaction makes you uncomfortable, tell one of the Youth Representatives, a Youth and Family Officer, another trusted adult or your parent/caregiver.
🗨️ Messenger group chats
The TSANZ Youth Chat is an extension of the Youth Club for ages 13–20. It is a peer-to-peer space for young people to stay connected between Youth Club activities.
Membership of the Youth Chat will be approved by TSANZ. Participants aged 13–17 must have parent or caregiver consent before joining. Participants aged 18 – 20 can join in their own right.
The Youth Chat will have at least two nominated TSANZ adult moderators. They help keep the chat safe, approve members and step in when needed, but the chat is not monitored 24/7.
New members may only be invited to join through the agreed TSANZ process, using a chat invitation link once the required consent has been confirmed.
Private messages between members are outside TSANZ’s direct supervision. TSANZ adult moderators will not start private one-to-one chats with young people unless this is necessary for safeguarding or TSANZ guidance, this will be handled transparently.
The same privacy expectations apply in Messenger as in Teams meetings: do not share screenshots, messages, photos or personal information from the chat outside the group without express permission.
🙋 Speak up
If something happens that makes you uncomfortable, you don’t have to deal with it yourself. Speak to one of our Youth Representatives, one of the group moderators or contact the adult support person.
💗 If something goes wrong
Our Youth Representatives can ask someone to stop inappropriate behaviour or conversation and can contact the adult support person at any time.
Where necessary, the supporting adult can join the meeting, help manage the situation or remove someone from the session or chat to keep everyone safe. Any significant concerns will be followed up by TSANZ.
✦ ✦ ✦
These house rules apply to TSANZ Youth Club virtual meetings and messenger chat.
TSANZ Youth Club House Rules – Version 1 (2026)
Ready to Join?
We'd love to welcome you to the TSANZ Youth Club!
Whether you'd like to join our virtual Youth Club meetings, Messenger Youth Chat or both, getting started is easy.
🦋 Step 1 – Explore the Youth Club page
Read about our activity channels and take a look at the Youth Club House Rules so you know what to expect.
📝 Step 2 – Complete registration and consent
If you're under 18, ask your parent or caregiver to complete our consent form. Participants aged 18–20 can register in their own right.
💜 Step 3 – TSANZ reviews your registration
Our team will check your registration and confirm the details needed to safely approve your participation.
✨ Step 4 – Get connected!
Once approved, we'll provide the relevant Microsoft Teams meeting or Messenger Youth Chat invitation privately so you can get involved.
Questions or Concerns?
We're here to help.
Whether you have a question about joining Youth Club, need help accessing a meeting or chat, or want to raise a concern, we're here to support you.
💜 Need a hand?
Get in touch with our TSANZ team if you need help with registration, accessing activities or finding the right person to speak to.
🛡️ Something worrying you?
If something happens during a Youth Club activity or chat that makes you feel uncomfortable or unsafe, please tell a parent, caregiver, Youth Representative or trusted TSANZ adult.
You can also contact TSANZ directly and we'll ensure your concern is followed up appropriately.
✉️ Contact TSANZ
Email: info@turnersyndrome.co.nz
Please don't include sensitive personal information in your initial message. We'll help you find a suitable way to discuss your concern privately.