TSSG is a small volunteer group of ladies with Turners and parents wanting to support women and families affected with Turner Syndrome, whether you are the parent of a newly diagnosed daughter with TS, a teenager or adult woman with TS, or pregnant with an in-utero diagnosis that the child you are carrying has TS. Sometimes all you may need is to hear a friendly voice or to have the listening ear of someone who understands what living day to day with TS is like. You may just want information about TS, or have specific questions. This is the service that we aim to provide and if we cannot instantly provide an answer, we will certainly know someone who can. You may just want contact with another parent or adult with TS. By becoming a member, the TSSG can put you in touch with someone as close to where you live as possible or at least provide telephone or written contact via our contact network.
We are a not-for-profit support group and rely on membership to enable us to continue to offer services and help others. Founded in 1989, a registered society - incorporated in 1993 and also a registered New Zealand charity (Registration number CC46754) as of July 11, 2011.
As of February 2011 we have established 2 branches:
Aims of the Turner Syndrome Support Group:
To provide support to people affected by Turner Syndrome & their families throughout New Zealand through:
Meetings: We have quarterly meetings in February, May, August and November held between Auckland and Hamilton
Newsletters: We have produced quarterly newsletters but at the moment we are without funding and will trial a news page on the website to keep members informed
Membership: $20 per annum. which enables you to attend social events, youth camps, and gives you access to our latest tools, books, DVD's and other resources. This helps with the running costs of our organisation.
Events: Girls Youth Camp – annually in January
Parent contacts: We offer telephone contact for new and existing parents as the need arises. And can put parents in touch with other parents in their area or with similar issues
Resources: Books, DVD, Pamphlets, Newsletters, Personal stories, Website